Intellectual Disabilities & Dementia

From Southern Maine Area on Aging (SMAA)

As you may know, people with intellectual disabilities may develop further cognitive losses due to dementia as they age. Adults with Down syndrome are particularly at risk for Alzheimer’s disease. Family caregivers may need to better understand the losses, changes in the person’s function and behavior, and strategies that may help them as their person needs more support. With funding from our Alzheimer’s Disease Initiative grant, SMAA’s Family Caregiver Support program has developed a training for these family caregivers. The information is based on the work of the National Task Group on Intellectual Disabilities and Dementia (NTG), with enhancements based on feedback from caregivers about their needs. The training consists of two 2-hour sessions, and we will pilot it at SMAA (Scarborough) on May 9 and 16, from 5:15 to 7:15 PM.

Please share this information with family caregivers of people with intellectual disabilities aging into dementia who might benefit. We can also include caregivers who offer Shared Living Options in their homes, but are not including staff who work at group homes, or other providers, at this time. We will be evaluating the program to look at how it can best meet caregiver needs.

For more information, please contact:

Ann O’Sullivan, OTR/L, LSW, FAOTA
Family Caregiver Support Manager
Southern Maine Area on Aging (SMAA)
136 US Route One
Scarborough, ME 04074

1-800-427-7411 / 207-396-6541